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Registered: 09-2018
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My Memory


I will cut to the chase here: when I was a small child (between 4 and 6 years old) I nearly died in the neighbours pool. I was a non swimmer invited to a pool party. The pool was filled with noisy kids, playing, shouting, splashing. Adults were sitting around the pool, laughing, talking, drinking. I ended up in the deep end by accident and I vividly remember what it was like struggling to get to the surface, when I was too small to reach the bottom with my feet. I don’t remember being pulled out, but I remember lying on the patio stones next to the pool, and I remember being yelled at by the lady who owned the pool, called and idiot and sent home. I had no idea what had happened. I was so young the word “drowned” was not in my vocabulary. I went home crying because I was being sent home from the party.

The part I don’t remember, couldn’t possibly remember, was me being pulled out of the water, not breathing, and given CPR!! I was sent home and no one informed my parents of what happened. I was not taken to a hospital, not examined or assessed, not given oxygen to repair the damage to my brain, not treated in any way.

There were four kids in that family who were old enough to know what happened, and two of them were the same age as my olde siblings, but they never said a single word about what happened.

Through my life I dealt with anxiety, memory and concentration problems, that got gradually worse as I got older. But the time my kids were teenagers they thought I was an idiot, and I was becoming frightened by my declining brain function.

For 12 years I asked doctors to investigate and they did not take it seriously. Finally I was sent for a sleep study and put on CPAP therapy (the machine that pushes air into your lungs at night) but it was another 4 years before I was diagnosed with CENTRAL APNEA, I did NOT have obstructive sleep apnea; the problem was in my brain, which does not regulate my breathing properly. While most people breath in and out continuously without needing to think about it, I breath too infrequently, too shallowly, and at night it is much worse. During my first sleep study I stopped breathing 37 times an hour (on average), and at one point I stopped for a minute and 21 seconds. My O2 saturation dropped below 75%.

CPAP therapy has helped me a lot but I have had to have the pressure level raised several times, and now, in my mid-50’s, I am noticing physical and intellectual problems that suggest I am getting worse. For example, more confusion. I also have a lot of trouble remembering faces and a problem noticing how much time has passed. Now I am also dropping things, and my typing skills are affected.

Eventually the truth came out. I was at my mother-in-law’s funeral, and a member of that family, who was also a friend if my ex-husband, came to me and said he always felt bad that I never received medical attention right after I nearly drowned in their pool. Other details came out, including the fact his mother lost a lot of friends that day! He asked me if I had any lingering problems from the time I was without oxygen!

The other day I saw an advertisement about neurofeedback to “map brain function” and find problems I need the brain, the implication being that they can be treated. I decided to look into it, since my own attempts to exercise my body and brain have not helped prevent the deterioration that I have noticed.

Since this is a paid treatment, I think I should talk to a regular doctor first and find out if this is something that a family doctor could arrange instead, and therefore would be covered by OHIP.



Last edited by starzlookdoun, 10/19/2018, 8:23 pm


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10/19/2018, 7:23 pm Link to this post Email starzlookdoun   PM starzlookdoun Blog
 
starzlookdoun Profile
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Re: My Memory


I had an email response to my enquiry about neurofeedback, whether it might help me, and what it would cost. I was disappointed by the high cost involved, including about $200 for the consultation, and $490 for the procedure, and it sounds like it is multiple sessions. I simply cannot afford that.

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10/21/2018, 9:41 pm Link to this post Email starzlookdoun   PM starzlookdoun Blog
 
LadyDy Profile
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Registered: 08-2004
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Re: My Memory


 emoticon wow that is crazy.

thanks for sharing it will take me a while to read everything

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P.S. I Love You

11/29/2018, 3:59 pm Link to this post Email LadyDy   PM LadyDy Blog
 


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